7 days til Seattle

Chiari AwarenessIn an attempt to keep people posted, I’m starting a blog.  I know Olive is loved by many, so in an attempt to raise awareness of this issue and keep people posted, I will be posting updates here as we settle in and get prepared for our brain surgery and its recovery.

For most of you that don’t know, Olive has a Chiari Malformation.  It is invisible and difficult for many people, even doctors, to understand that Chiari is a serious medical condition.

We are scheduled for Dec. 18th at Seattle Children’s Hospital.  She will be having Posterior Fossa Decompression with Lamenictomy of the C1 and possibly C2.  A chunk of her skull will be removed, her dura will be completely opened and the Cerebellar Tonsils with be electro-cautorized in an attempt to abate the herniation of her brain.  Her own tissue will be harvested to patch back up her dura.  Once this is done she will be sewn up and the recovery begins.

I will continue to upload links and updates as we get further along.  For now, I’m just excited I figured out how to start a blog….

2 thoughts on “7 days til Seattle

  1. I understand the stress and worry of having your child about to undergo brain surgery. I have Chiari and have had 2 decompression surgeries. Then 3 1/2 years ago my 13 year old daughter was diagnosed with Chiari and underwent decompression surgery. She did amazing with surgery and recovery. Children really do recover and heal quicker than adults. I will pray for your daughter and your family. Try to hang in there and know there are plenty of us who’ve gone through this that are happy to talk or listen! 🙏🏻🙏🏻🙏🏻

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